Hello, I'm Yehuda

A fateful experience with a disabled classmate would later transform into my mission to address the unmet needs of people with rare diseases. Since that time over two decades ago, I’ve spent years networking with non-profits, caregivers, medical professionals and business leaders to foster better treatment and independence for the 1 in 10 Americans living with a rare disorder.
‍
In some way or another, these issues affect everyone, with every American adult personally knowing someone with such a condition, whether a friend, family member, or work associate. There are over 30 million Americans living with a rare disease today. I am one of them.

It takes strength to ask for help,
and help gives us strength.

Over the years, my hydrocephalus and cerebral palsy have required more than 20 surgical interventions, and my experiences throughout have revealed opportunities to link organizations and individuals in a web of mutual support, to strengthen ties among patients, caregivers, and doctors, and to find new ways of helping each other.

With this in mind, I’ve connected with over 100 organizations while acting as a patient advocate and campaign leader. Consulting with these organizations, networking with doctors, and listening to patients, I have spent my adult life drawing resources and connecting people with the help they need. Sometimes, this has meant consultant work for non-profits, where we’ve increased revenue and connected with a greater target audience. Other times, our campaigns have brought many wonderful people together to improve our communities in different ways— in one case matching dozens of bone marrow donations after organizing thousands of volunteer tests. Wherever one connection is made, others follow, and with strength added to strength, our journeys are interconnected—each of us a conduit for a better world.

The Pulse Behind The Brand

Part of my purpose is to act as a connector. With public speaking engagements and podcasts, I build awareness, expand community, and add to the power of our shared connections. Drawing upon stories of strength and inspiration, I encourage others to unleash their greatness. Using my voice to amplify others’, I guide physicians, families, and people with rare diseases into a new narrative and dialogue, consulting with the patient’s unique perspective and implementing it in the treatment process, all serving a message of Hope.

‍

Hope for patients and their families, for doctors and caregivers. Hope for people who want to overcome their challenges, whatever they may be. Hope through greater Advocacy, Action, and Autonomy. Please have a look around to learn more about how I can be of help to you. Thank you for visiting—and thank you for joining the message of Hope.

Hello, I'm Yehuda

It takes strength to ask for help,
and help gives us strength.

The Pulse Behind The Brand

Useful Links

Follow Me

Join My Newsletter

Hello, I'm Yehuda

It takes strength to ask for help, and help gives us strength.

The Pulse Behind The Brand

Useful Links

Follow Me

Join My Newsletter

It takes strength to ask for help,
and help gives us strength.